Relationship Revolution

 

“In my lifetime I want to see the culture of medicine driven more by relationship than by revenue.”

–me

 

Nice to be back, friends!

This post is a bit different from my usual format and style.  It’s maybe more raw and blunt.

Please bear with me and keep an open mind?

I know posting this may be risky.  It started out as just jotting down ideas for a longer, more detailed future post.  I had to get the ideas and thoughts out so I could focus on work.  And then the ‘jotting’ somehow evolved into what I imagine a poetry slam might look like.  So I decided to post as is.

My long term objective is to stimulate generous thought and respectful discussion between patients and physicians.  I wish to prod us out of our default complaint modes and reorient all of us to the idea that we are all on the same team, but our connections are under siege by outside forces.  The system harms and oppresses us, physicians and patients, the end users, and the ones with the real power.  Together, we are the sleeping (sedated?) giant that must rise up and reclaim the system for ourselves.  This post is an attempt to spark the flame that draws us together, by pointing directly to the spikes that drive us apart.

Disclaimer: What follows is my own expression and does not represent or reflect the opinion or position of any colleague, institution, or professional society with whom I associate or to which I belong.

ice castle spider legs

I hear my colleagues say: Get rid of the patient portal!

It’s too much!

Limiting characters does not work, they just send multiple messages

Charging for messages just makes more work

“They abuse the system”

“We give an inch, they take a mile”

Keep them away!

Us vs. Them mentality.

Antithetical to mission of medicine: To meet patients where they need us, and help them.

WHY?

Because we are too busy.

DOING WHAT?

Every. F*ing. Thing.

Rx prior authorizations

Endless documentation, infinite clicks

Rx refills with no information on follow up or patient status

Filling slots to meet RVU goals

Prescribing more meds to meet “quality” goals

Keeping up with the latest evidence for every disease, test, treatment, guideline, diet fad

Rushing to the next patient so that the patient we’re with does not have time to even think of their questions, must less ask them

Patients walk away from visits with their true needs unmet.

So they use the resources available to them to ask for what they need.

And this ‘adds’ to our work

And we feel busier and more frustrated, exhausted, frayed, irritable

We feel Overwhelmed.

 

Patients also feel it

They feel unseen, unheard, dismissed, discarded

And they don’t understand or relate to where it comes from

They get angry

So they send more messages: to us, about us; criticizing us, lashing out

Making us feel bad about ourselves

Which manifests as defensiveness first, then even more frustration, exhaustion, irritability

But we don’t disengage.

We remember our calling.

We forge on in smoldering resentment, pride, bitterness, duty, guilt, shame, and occasional fulfillment

 

And then abstractions to reconcile the cognitive dissonance

 

Patients suck

All they do is take take take

They don’t understand that I’m Doing My Best to help them

Why don’t they appreciate me

They are so entitled these days

They want everything now now now

They think I’m at their beck and call

Like I’m not working every minute of every day

Like I don’t have a family and a life also

Like I live only to serve them

Patients are the enemy

Really?

 

Oh and it happens on both sides

 

Doctors suck

All they do is type away at that blasted computer

They don’t even look up, see me, or hear me

They don’t understand what I need

They just want to see more patients

Make more money

I’m just a number to them

A cog on a conveyor belt

They’re all in the pockets of Big Pharma and Insurance

They withhold the help I need

They hoard it

They don’t care about me

They Don’t Care About Patients

All they care about is making the next buck

Doctors are the enemy

Really?

ice castle doorway

There is no substitute for the Time and Energy

Required to cultivate Healthy, mutually Respectful, mutually Fulfilling, mutually Beneficial relationships

It is always a two-way street

Our relationships kill us or save us.  Always.

snake river keystone

Doctors and patients must find ways to reconnect

Find one another through the thick morass

And Hold Tight

In Solidarity

Learn, Train and Practice Together

Our Communication, Empathy, Compassion, and Collaboration skills

Defend against the forces that drive us apart

Advocate for one another and for our Sacred Contract

So we may once again

Heal Through Connection

 

Brain-Fried Noodle

Redwood Park

It’s post-op day 8, woo hoooo!  To all my patients who have had surgery, now I know what it’s like—a little bit.  What a fascinating experience, and I’m so grateful now that I can relate!

Some of you may know that I tore my ACL in November playing volleyball.  It only took me a few weeks to decide I wanted to have it repaired (reconstructed, actually), because I don’t ever want to wonder whether my knee is stable enough to do the things I want to do.  I have now officially embarked upon that journey of rehab, and so far so good. This post is my story so far.  Just wanted to share.

Pre-Op Eval

The 10 days prior to surgery were some of the busiest in recent memory, starting with a whirlwind weekend with the kids in San Francisco ending with us on a redeye back to Chicago and cabbing it straight to the office where I borrowed my colleague’s clothes for the day.  Then back to back meetings, clinic days full of patients, a team-building seminar, a Grand Rounds presentation, Chinese New Year, a teaching session with my awesome medical students, a movie play date, a confirmation retreat, and laundry.  I barely got enough sleep, and the eating was not great.  But at least I wasn’t sick/infected.

I got all kinds of useful advice from friends and colleagues:

Use the meds!  Opioids are great for post-op pain. Expect maximum pain and swelling at 48-72 hours.  Well the block lasted at least 48 hours so no pain then.  And since then it’s actually not that bad—like a giant toothache at the knee, with radiating soreness up the thigh and down the leg.  Tylenol alternating with Advil pretty much takes care of it.

ICE ICE ICE!! Oh, how I love my electric ice machine.  It’s a pad that wraps around my knee and circulates ice water drawn through tubing from a cooler.  Brilliant!

Take time off, at least 2 weeks!  Like a silly person, I’m going back to work tomorrow.  I was even sillier initially to think I could have surgery on a Thursday and go back to work Monday!  Lesson learned, but hopefully I will never need to apply this learning?

The Jitters

The night before surgery, I wrote in my journal an “In case I die” entry.  I told my sister where I left the book, so she would know where to look for the message to my kids in case something bad happened.  It’s a little embarrassing to admit, but I imagine I’m not the only mom who has ever felt this way.  It was pretty irrational, but hey, it was my first major surgery—anything could happen!  Sitting in the cart in pre-op, I got tearful (and still do now), thinking of how much I’d miss the kids, what they would have to go through, how everything would change, if I died.  But when the anesthesiologist asked, all I could articulate was, “I keep thinking about all the things I should have done for them this morning—packed their lunches…”  He had the perfect words: “It’s never enough.”  And with that I felt strangely reassured and absolved.

The MEDS!!

So here’s the most dissociating part of the experience.  In pre-op I was handed a little cup with five pills: two 500mg acetaminophen, one 75mg diclofenac, and two 300mg gabapentin.  That’s standard pre-emptive pain management, apparently.  Then for the femoral and sciatic nerve blocks, the anesthesiologists used bupivicaine and triamcinalone.  Once in the OR, they started clindamycin to prevent infection, and then midazolam, fentanyl, and propofol for the sleeping cocktail.  Of these nine medications, I had taken exactly three of them ever before.  It was a little alarming, even though I knew the indication and rationale for each drug.  I found my inner voices exclaiming at once, “Wow, this is totally routine, we have really got it all figured out,” and “HOLY SHIT ARE YOU KIDDING ME NINE MEDICATIONS SIX OF WHICH I HAVE NEVER HAD BEFORE AND YOU’RE JUST GIVING THEM ALL TO ME LIKE IT’S NO BIG DEAL I COULD TOTALLY DIE FROM THIS WHY ISN’T ANYBODY THE LEAST BIT BOTHERED!?!?”  And I did just fine, like everybody expected.  Fascinating.

new tongue out emoji

Source: http://www.iemoji.com/view/emoji/2488/smileys-people/crazy-face

And whoa, the meds…  Apparently it’s a known side effect of propofol to shiver when waking up from it.  That was uncomfortable, but even more so was the inability to pee for about 40 minutes, despite having a bladder that felt like it could burst at any minute (I know that could not happen, but literally, you could have bounced a coin off of my lower abdomen it was so full).  Thank God for the experienced nurse who offered me hot tea—what a relief!  And finally the nerve blocks—amazing.  I could flex my hip normally, so I lifted my braced left leg into the car while standing on the right; but lower than that I had neither sensation nor motor control for a full 24 hours.  It.  Was.  Dead.  The foot/ankle came back first, with that creepy, stinging, tingly sensation.  Then slowly, begrudgingly, the thigh returned.  The muscle twitches throughout came mostly at night, as if waking from anesthesia is, of course, a nocturnal activity.

I felt pretty clear-headed after about an hour in recovery, fully coherent and articulate.  But man, I could not really focus or hold attention for long at all.  I had all kinds of articles saved to read those first two days lying in the recliner, but it was just not happening.  My mood was great and I had long periods of alertness.  And then I just wanted to sleep–deeply.  My body was not only unresponsive in the left lower extremity; it felt limp and weak kind of everywhere, my mind included.  Hence the title: Brain-Fried Noodle.

The Pain

Those first two days were fantastic in terms of pain—none whatsoever (thank you, bupivicaine)!  And I was on the ice machine 24/7.  Since then two pain patterns have emerged.  First, the deep ache from having the joint capsule invaded and a tunnel drilled through bone.  That’s the giant toothache, almost like a deep itch that wants to get scratched from the inside.  The second is a hypersensitivity of the skin where all the bruising is.  It’s swollen, tender, and oh-so colorful!  And it zings every time I pull on my compression sock, from the ankle to halfway up the thigh.  That’s what makes me stop and breathe deeply for several seconds.  I figured out today that I’m probably not drinking enough water, which likely contributes to my pain.  It’s so ironic, as my primary advice to patients for almost any ailment is to hydrate first.  Well, this is me trying to walk the talk.  I’m so happy not to have needed opioids (so far), and everything should continue to improve as the tissues heal.  HYDRATE!

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The Rehab

I swear, I think I have lost 50% of my quad on the left.  My physical therapist thinks I’m progressing well, and I’m happy with where I am.  This will be a long road and I must monitor my expectations.  First, prevent further atrophy while tissues recover initially.  Then weight bearing, stability.  Then strength, coordination, and eventually back to sport.  Patience, diligence, persistence.  I’m told PT should make me cry, it’s so painful.  Well, it’s definitely making me sweat!

The LOVE

*sigh*  We really can’t do anything well alone in life, huh?  All the advice, all the well wishes, all the texts and messages right before and right after surgery—every single one held me up a little higher.  And my mom, who insisted on coming despite my denying the need—now I get it.   And thank God for her.  Thank you, Ma!  Last week would have been quite hellish for us all if not for you!  The hubs and kids have been pretty great, too, accommodating my crutches, ice machine, and constant occupation of the chaise side of the sofa.  Every day they come home and ask how I am and how they can help.  I’ve tried to do what I can—sort laundry, rinse/cut vegetables, instruct our amazing sitter on recipes, pay bills, make sure our DVD machine doesn’t die from under-use…  But there is no substitute for a wide and strong support network, and mine is as dense as they get.  Thank you, all my friends and family, for all of it.

* * *

Huh…  I thought I could accomplish so much more in 8 days off!  I fantasized about all kinds of blog posts, reading, correspondence, de-cluttering.  Hey, I said fantasy, didn’t I?  Oh well, time flies like an arrow, fruit flies like a banana.  Things don’t usually turn out the way you plan.  Maybe it will be good to slow down for a while, reorganize, reprioritize, focus… For now I gotta get that second set of exercises in tonight and get to bed on time—and hydrate—work tomorrow!

Onward, friends, hope you are all well!

The Only Diet That Works

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Hello Friends!!  Oh my gosh, it feels so good to be writing again, like sinking into my favorite squishy armchair, at the campus coffeehouse where I have met my friends since college, to sip, gab, bond, and plot to save the world.

New phase of life, woo hooooooo!  And eekgadds.  I have long thought of balance as a dynamic state, like that octopus ride at the amusement park.  I am the ride, spinning around, raising and lowering each aspect of life in controlled coordination, attending to each car so nobody flies out and gets hurt.  With the added responsibility I have taken on at work this year, it feels like I have just agreed to accept a massively overweight rider in that car, and my whole frame now strains to keep everything moving smoothly.  At first everything looks normal.  But the continuous strain of gravity, mass, and cumulative sheer forces create microfractures in my arms over time.  And suddenly one day, something (or everything) may come crashing to the ground.  People get hurt.  The ride is broken, in need of major repairs, possibly never the same again.

 

So better to slow the RPMs now, decrease the amplitude of vertical oscillations.  And, increase frequency and intensity of maintenance: inspection, lubrication, computer upgrade, parts replacement.  All of this is to say that 2018 is my year of graduate study in life-octopus ride maintenance.  Curriculum so far includes a lot of Thomas Rhett songs (“Drink a Little Beer”), communion with close friends, and a resurrection of my spiritual life.  I’ got this. [fist bump emoji]

***

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Okay so, this is a post I have thought about for weeks and I can finally sit down to write it today/tonight.

Since December, two people have told me, essentially, “Medicine has failed at nutrition.”  One person was a good friend, the other a new acquaintance.  Both were athletes, well-educated professionals, and thoughtful men.  I respect both of them and was intrigued by their assertions (and, honestly, just a little defensive).  They pointed to the myriad books, fads, products, news articles, and programs around the country in the last decade or so, all claiming to have the one method for lifelong healthy eating.

Their expressions went something like this:  “What’s the deal with gluten?  I’ve read Wheat Belly and Grain Brain and now I feel conflicted every time I want to have some bread, even though I feel fine, and I like bread.  …Is saturated fat bad or good?  On Atkins I can have as much steak and liver as I want, and my cholesterol is supposed to get better.  And Bulletproof says I should be drinking butter and coconut oil in my coffee.  But my doctors all tell me to minimize red meat and oil in general.  …The Inuit people live off of whale blubber, and they have a fraction of the heart disease we have.  I used to think I knew how to eat healthy and now I’m not so sure.  I’m so confused.”

I was taken aback somewhat by both of these conversations, as I don’t feel confused at all about nutrition and eating.  I feel personally tempted, frustrated, vacillating, under-motivated, and/or fat, depending on the day.  But professionally I feel informed, confident, and reassured that I can counsel my patients solidly toward optimal health.  So wherein lies the disconnect?

In my practice, our approach to nutrition starts with the patient interview.  What is your current eating pattern?  How does weekend or travel eating differ from regular workdays?  How does this pattern either promote or hinder your health and well-being?  What are you doing that’s already healthy and where is there room for improvement?  What needs to happen in order for you to make small, sustainable behavior changes for optimal health?  How important is it to you to do so?  The conversations focus on my patients’ own physical, mental, and emotional experiences around food.  They have a chance to relate their eating habits to personal and professional goals, and a vision for their best selves.

I have learned that my advice needs to be concrete, specific, and relevant at a granular level.  I can roll with Paleo, Atkins, Whole 30, gluten-free, vegetarian, ovo-lacto, oil-less vegan, pescatarian, Mediterranean*, or other diets.  There is some good evidence for all of them.  But is any one of them the sole antidote to all of our eating poisons?  My left brow rises every time I hear someone make this claim.  Here’s the key:  None of these diets tell us to eat pizza, burgers, chips, cheesy fries, dinner rolls, diet soda, craft beer, loaded nachos, fettucine alfredo, cookies, cake, ice cream, and candy the way most of us do.  So what are the underlying origins of my night-time corn chip-cream cheese binges?  What strategies can we brainstorm to cut back on my birthday cake consumption between birthdays?  Questions like these and the conversations that follow serve my patients far better than my recommending the blood type diet (which I do not).

Furthermore, leading proponents of each of these diets also emphasize the importance of concurrent self-care in the other realms of health: Exercise, Sleep, Stress Management, and Relationships.  Diet and nutrition are vitally important for health, but they do not occur in a vacuum.  All of our health behaviors need to be assessed in their combined context, and recommendations are best made with circumstances, preferences, logistics, and access in mind.

If you’re an elite athlete whose diet is already 99% cleaner than the rest of us, yes, maybe there is a subtle difference between medical diets that will affect your performance and sports longevity.  Then again, maybe not.  And you are also likely attending to your needs for training, rest, recovery, and stress management.  So you’re probably good either way.

For us regular people, the only diet that works is the one we can stick to, that doesn’t cost us inordinate amounts of psychic energy to maintain, and that actually makes us healthier.  How can we tell we’re healthier?  We may feel: lighter on our feet, increased energy, more regular bowel movements, clearer skin.  When we see our doctors (as we all should, ahem) they may find we have lower blood pressure, lower body fat, smaller waist circumference, lower fasting and overall glucose, lower LDL and triglycerides, and an overall brighter aura and vibe.

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So maybe keep Michael Pollan’s words in mind as a general guideline: “Eat food.  Not too much.  Mostly plants.”  I would add:  Eat foods as close to how they occur in nature as possible.  If you can tell what leaf/seed/grain it is by looking at it, it’s probably better than if you cannot.  Harvest/kill it, cook it (or not), eat it.  The fewer steps the better.  Eat often and slowly with people you love.  Help each other moderate the junk.  Enjoy your food.  Life is short.  Strive for an eating life that adds joy and delight to your whole being, both immediately and in the long term.

Onward, my friends.

 

*I have no financial, philosophical, or other interests in any of these or other diet programs, products, centers, providers, etc.