The Code of Us: Opening Mind and Heart to Difficult Possibility

Spoilers likely, dear readers!
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The best books make me both feel and think deeply. The Code of Us by Liv Evans has done so to such a degree that I will not do it justice in this post–I’m still hung over! But processing the story must start somewhere, and if I can move someone here to read or listen to it and discuss, then it will be worth the effort.

Mia, a dedicated neuropsychologist, researches artificial intelligence. Her husband, Arden, creates beautiful sculptures out of things people throw away. Their devoted love story serves as the steadfast anchor for a novel that throws into question everything we may think we know about cognition, memory, technology, relationship, and evolution–about how we think and feel about humanity itself.

Arden agrees to serve as Mia’s alpha subject for her ‘replicated intelligence’ project, meant to preserve and enhance human memory in service of improving people’s quality of life–eventually, when the product is fully developed. When a traumatic brain injury renders him essentially brain dead and on the brink of actual death, she and her two colleagues and close friends rush to implant Arden with a chip that brings him back to life, body and mind, with the still nascent but fully functional technology. Told in alternating present day and flashback, a complex journey of loving intentions, ethical dilemma, grief and loss, unintended consequences, and social implication unfolds.

While the plot engages, stimulates, and challenges me intellectually, it’s the emotional and relational evocativeness–the human(e) relatability–that makes this book an instant treasure in my library. In a mere 188 pages (5:37 hours, narrated by the multitalented Jodie Harris and Steve West), Evans examines–presciently, brilliantly–myriad potential complications and consequences of artificial intelligence–intellectual, social, legal, psychological, and corporeal, among others.

To ground the exploration in an unwavering love story, though, centers readers’ attention on the relational implications, which speak directly to my raison d’etre. Of all the questions that emerged in 10 pages of journaling on this book, the one I most wish for us all to consider is, “How does AI, in any given space, uphold and protect the humanity of all whom it touches?” I almost dismissed it as too difficult a question to attempt answering. But the more I consider the complexity, inevitability, and acceleration of this technology, the more I feel convicted that we, the human creators and consumers of AI, must step up to ask and answer exactly such challenging and overwhelming questions. We are called to be more thoughtful, considerate, inclusive, and complexity-tolerant than we have ever been, by a long shot.

Whatever we do will always be imperfect. There will always be unintended benefits and harms, and our attempts to weigh, compare, and justify it all will always leave many unsatisfied and frustrated. So how do we proceed? How do we show up to engage with the most complex adaptive problem that many of us can ever fathom? What mindset(s) will minimize the risk of nefarious, greedy, and inhumane forces overtaking the altruistic, humanitarian, and egalitarian ones?

Last fall was the first time I thought and wrote in any depth about how AI will change medical practice. Since then I open more and more to the potential benefits, led by my astute and altruistic colleagues in primary care, who model thoughtfulness, compassion, and critical (neither blind nor cynical) appraisal and application.

As my own learning progresses, some key concepts emerge that I will hold in front. They will evolve, obviously, and I ground them always in the commitment to enhancing human to human connection, no matter what tool is considered.

Acceptance with conditions

Humans innovate. We create. We aspire, imagine, and push boundaries. It is the greatest gift of our intellect, and also a potentially fatal flaw. What’s done cannot usually be undone. I accept it all in iterations, fear and trepidation giving way slowly to cautious possibility. That said, nobody should be given carte blanche to advance technology unfettered. Banning development only drives it underground, where the presence and risk of nefarious forces increases, in my estimation. Thus, we must accept and embrace our discomfort with the unknown and uncertain, ask the hard questions, and grapple with the ardent persistence of true infinite game masters.

Transparent and mindful accountability

Ethics committees are a good start. Checks and balances on the runaway flaws of primarily capitalist ventures must be established and maintained. Open source data and outcomes sharing will be key for minimizing harm, I think. That conflicts directly with the competitive financial drivers of innovation, I know. So we must, somehow, wrestle earnestly, honestly, openly, and in good faith with the novel humanitarian complexities and problems that AI creates. We must do accountability better than we ever have which, sadly, is not saying much.

Agile and adapative commitment

There are no words better than exponential acceleration to describe the march of modern technology. We have built this kite that flies ever higher and faster, and if we hope to influence its path at all, it will take more than the string and gym shoes we started with. We must invent the tethering, weighting, and conveyance materials, structures, and vehicles in real time. The faster and more fully we accept the inexorable progress of AI, the more effectively we may flow with it rather than against, to move swiftly and smoothly to manage its ethical, humanitarian, and social implications and consequences.

Critical hope and optimism

Be warned: The Code of Us is not a romance novel, despite its love story core. The book does not end happily, though the end of the book is not necessarily the end of the story. It took a few days for me to identify all of my emotions, led by sadness in depth and intensity. Liv Evans summons, with incredible economy of language, a viscerally, if not cognitively coherent (and thus quintessentially human) cacophony of feelings that at once proves the undeniable shared humanity that fiction evokes, and yet wholly defies full articulation. I don’t think I have ever journaled ten pages about any book, and I’m still intellectually, emotionally, and existentially entangled. Surprisingly, it feels light rather than heavy. This book teaches me a lesson that recurs: With every degree of acceptance, I gain a commensurate measure of liberation. Despite so many egregious examples to the contrary, I still believe humans can transcend our most self-serving, collectively self-destructive tendencies. I believe we have the capacity to collaborate for the common welfare. We just don’t readily exercise it. I have called myself a cynical optimist. Today I choose critical optimist, because we simply must proceed. We must hold onto that kite and not allow ourselves be dragged. In medicine we learn critical appraisal skills: how to evaluate data and evidence for validity and application. When the data is good, we accept it and apply, until new and better data shows us otherwise.

My opitimism is not blind. It is realistic and evidence-informed, if not fully evidence-based. I will deepen my acceptance, demand transparency and accountability, and train for adaptive cognitive and emotional agility. I intend to run with rather than get dragged or trampled.

We humans may destroy ourselves in the end, and that will be what it will be.
Until then, however, I still have hope that we may yet save ourselves.

Love Letter to My MD Classmates

My first stethoscope, retired now after 29 years.

Congratulations, Pritzker School of Medicine Class of 1999! It’s been 25 years.

Look how far we’ve come! Many of us were babies when we started–in our early 20s, brains not even fully formed, enrolled straight out of college, innocent and arrogant at the same time. Now some of our own children are that exact age, and we look at them hiding knowing smirks. Oh, they’ll learn life in good time, these kids.

Being with so many of you this weekend, some not since we graduated, filled my heart with such expansive warmth and joy. We are all now still who we were then–same smiles, postures, mannerisms, quirks. And we have all definitely ‘matured.’ Some of us now sport lighter hair and heavier bodies. Others, damn you, exhibit no observable physical changes. Our greatest acquisition, however, is our hard-earned wisdom and character–that which can only come with lived experience. Med school was no joke, and residency a trial by fire. We have all witnessed life at its first and last breaths, and among all of us, everything in between. We listen, watch, palpate, percuss, incise, excise, medicate, compress, intubate, ventilate, inject, evacuate, saw, cauterize, staple, and suture. We research, write, present, teach, and lead. We are the experts in our fields. And yet, our age and work have taught us humility, made us reverent, lifelong learners first. As technology accelerates and we increasingly inhabit a world of human creation, with which we are not physiologically equipped to cope, we, the Class of 1999 and our colleagues of other years, persist in our oath to care for our fellow humans to the best of our ability. We commit to Helping however we can, to comforting even when we cannot relieve or cure.

I feel a kind of double vision, seeing us as we were then when I look at us now. The playful comaraderie, the stories, the shop talk–it’s as if no time has gone by–we are still us, Pritzker ’99. This is how deep, bonded belonging feels. How many of us marveled repeatedly this weekend over tacos, drinks, snacks, and dessert at the special-ness of it all? We are a tribe within a tribe, a cluster of diversity unified over time, experience, and age. Differences between and among us in youth feel almost irrelevant now, frictions dissipated, shared memories cemented. Interdisciplinary stereotypes and tensions evaporate among us as classmates. We knew and know one another first as whole people, in the same boat from the outset, rowing together, ever forward. HA! We grew from undifferentiated, pluripotent stem cells into fully functioning end organ tissues, now differentiated and still attuned to one another–like a nascent, then seasoned orchestra playing an ever larger and more complex repertoire.

OH, how I reveled in the hugs, the smiles, the recollections, reflections, and communion, the hopes and plans for future sustained connection. It felt honest and vulnerable, soft and strong, professional and personal–safe–one of you said it felt like coming home. Yes.

*sigh*

I had no idea 25 years ago that it would feel this way now. It’s the best, most heartwarming surprise. I wrote about our 20 year reunion, which I only just now remembered. Clearly, these events move me immediately and deeply, this time even more so than last.

My greatest wish for us all, my dear classmates, is that we may continue bravely, wholeheartedly, generously, joyfully, and humbly, on the mission of our esteemed profession, for many years yet. My greatest hope is that we maintain and tighten our bonds, holding one another up in spirit across the miles and over the coming decades. My greatest joy is that we may stay connected, no matter what happens in our careers and lives.

Peace, love, and light to you all. May our collective affection and bond call forth the best in us, for ourselves, our patients, loved ones, institutions, and all of humanity that we have the privilege to touch.

To Comfort Always

Joseph Carey Merrick; Written by Michael Howell and Peter Ford, Narrated by Steve West

Sometimes a book affects you.

You already know parts of the story
Because it’s legend
And you know it’s sad
You just don’t know how sad
And you usually avoid such things

And then you see
That your favorite voice actor narrates the True History
And it’s also about the doctor
Who did good
By a patient, a lovely man
Whom the world had degraded and abandoned
So you decide to endure
Because you know the voice
And you trust it to shepard the account
With respect and dignity

And through the tragedy
That almost brings you to tears
Because how can people be so cruel
How can one person endure so much
And never harbor bitterness, resentment, or rage

Through all of that
The line that shines most brightly
That calls to your physician, helper, human soul
Is one you have not heard in years
When you should probably recite it yourself daily:

“To cure sometimes, to relieve often, to comfort always.”

These days people expect
Cure often if not always
Relief, when incomplete, disappoints

And Comfort, well, what does that even mean
In an age when physician-patient
Relationship is defined more and more
By transaction than by
True and deep human connection

And yet
Stories like this inspire, reassure and
Comfort us
Who do it for the connection
Because in the end
It’s worth every effort

————-

The True History of the Elephant Man: The Definitive Account of the Tragic and Extraordinary Life of Joseph Carey Merrick
Written by Michael Howell and Peter Ford
Narrated by Steve West

Due to horrible physical deformities, he spent much of his life as a fairground freak. He was hounded, persecuted, and starving, until his fortune changed and he was rescued, housed, and fed by the distinguished surgeon, Frederick Treves. The subject of several books, a Broadway hit, and a film, Joseph Merrick has become part of popular mythology. Here, in this fully revised edition containing much fresh information, are the true and un-romanticized facts of his life.

©2010 Skyhorse Publishing, Inc. (P)2012 Audible, Inc.

*I have no interests in any entities mentioned in this post